Webinars
Upcoming Webinars:
Research Webinars:
Research Update: Hosted and organized by The ALS Association’s Research Department
May 21, 2012 (Monday) @ 1:00 PM, PT (4:00 PM, ET)
TDP-43 PROTEINOPATHIES IN ALS-DEMENTIA
Speaker: Professor Virginia Lee, Center for Neurodegenerative Disease Research, University of Pennsylvania, Philadelphia, PA
Meeting Number: 828 221 730
Meeting Password: Chicago1
https://alsa.webex.com/alsa/j.php?ED=165062797&UID=1209165842&PW=NMDNiOGQyN2Ix&RT=MiM3
Assistive Technology Educational Series
May 21, 2012 (Monday) @ 11:00 AM, PT (2:00 PM, ET)
Quality of Life through ipad Technology
Speaker: Alisa Brownlee, ATP, ALS Association, Greater Philadelphia Chapter
Call-in toll-free number (US/Canada): 877-668-4490
Meeting Number: 829 580 537
Meeting Password: Topiccall1
Archived Webinars:
Assistive Technology Educational Series
Nutrition in ALS- Calories, hydration, and tube feedings
Speaker: Lorraine Danowski, MSRD
Dietetic Internship Coordinator at Stony Brook Long Island, NY
This presentation will cover what portion sizes in an oral diet would be needed to meet nutritional requirements as well as what volume of fluids/ water are required to meet basic hydration needs. Different types of tube feeding products and oral supplements will be discussed that help meet these needs. Tube feeding administration methods will be explained and a few case studies presented to encourage questions and help the audience troubleshoot common diet/tube feeding issues such as intolerance and optimal time for tube placement
Call-in toll-free number (US/Canada): 877-668-4490
Meeting Number: 827 750 683
Meeting Password: Nfcm2011
https://alsa.webex.com/alsa/j.php?ED=156164467&UID=1180146937&PW=NNDZiMzY2YjU0&RT=MiM0
Federal Benefits for Veterans and Families Affected by ALS
Speaker: Bo Rollins, President, Rollins Professional Services, LLC
Learn important information about benefits for veterans and/or families and survivors who are dealing with the impact of ALS on their lives. This webinar will also be valuable to those who care for veterans with ALS as well as Patient Care Coordinators. We will discuss briefly all VA benefits available to veterans and to survivors of veterans who have passed away from ALS. Ample time will be provided for questions and we will be available to provide follow- up support to those who need it at a later time.
Exercise Clinical Trial for ALS
Speaker: Nicholas Maragakis, M.D.; Johns Hopkins School of Medicine, Baltimore, MD
Despite decades of discussion over the potential benefit or harm of exercise in ALS, no study has compared two forms of exercise (resistance and endurance) with the current standards of ALS care: stretching and range of motion exercise. The ALS Association is funding this research, a randomized, controlled study. The long term goal of the study is to design a larger efficacy study and eventually develop a consensus statement on the potential benefits (or detriments) of exercise in ALS.
For information about how to join this call, please visit www.alsa.org under “Our Research.”
Register: http://web.alsa.org/site/Calendar?id=145181&view=Detail
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