You Are Not Alone
Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.
Browse the links to the left and below to find more information and answers to many questions, as well as a plethora of additional resources to assist you.
National ALS Registry
The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated. Please help us by enrolling today.
It is also important to learn about your insurance coverage, healthcare facilities and how to obtain support for yourself and your family. This site provides a list of ALS Association Chapter-run support groups and affiliated healthcare facilities here.
You may want to contact your medical insurance provider and request that you be assigned a case manager to be your primary point of contact.
If you served in the military, contact the Department of Veteran Affairs (800-827-1000) about eligibility for health, vocational rehabilitation and disability programs and services. Some information about military benefits can be found here.
Need more help?
Questions may also be answered by contacting your local chapter or calling the Patient Services staff at The ALS Association National Office. The office is open every business day from 7:30 a.m. to 4 p.m., PST, at (800) 782-4747.