June 9 - 11, 2019 – Washington, D.C.
The ALS Association has launched a new public awareness campaign featuring Hall of Fame quarterback and FOX Sports announcer Terry Bradshaw to raise awareness of ALS and the progress that has been made since the ALS Ice Bucket Challenge in 2014. Two of the videos released by The ALS Association feature Bradshaw and Pat Quinn, who co-founded the ALS Ice Bucket Challenge five years ago. Bradshaw started working with The ALS Association because of a long-time Pittsburgh Steelers fan who had ALS. Harrison Anderson, a North Carolina man who was diagnosed with ALS in 2016, used his wish from the Dream Foundation to request a call from Bradshaw. On that call, Anderson asked Bradshaw to consider doing a public service announcement for ALS. Anderson died on December 29, only weeks after Bradshaw filmed the PSAs. Fortunately, Harrison got to see the videos before he passed and he was thrilled with them. Our thoughts are with his wife, Robin, and their entire family. We’re glad Harrison’s dream is now a reality.
Project Revoice
Project Revoice is a initiative with the ultimate goal to ensure that no one living with ALS will ever have to suffer being robbed of their voice.
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Walk to Defeat ALS®
Walk to Defeat ALS® draws people of all ages and athletic abilities together to honor the courageous souls who are affected by ALS, to remember those who have passed, and to show support for the cause. When you Walk to Defeat ALS©, you help expand the programs and services that benefit people living with the disease across the nation and in your community.
I Will Attend
Advocate
The U.S. government is the single largest funding source of ALS research and care, and ALS advocates play a critical role in securing federal support and concern for the cause. Personal stories and passionate testimonials show Congress why they must do more to find the cure for ALS. We need your help.
I Will AdvocateView Our 2019 Public Policy Priorities
National ALS Registry
The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes.
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Whether you’re newly diagnosed, navigating your journey with the disease, caring for a person with ALS, or researching the cure, there are resources to support you.
Find information on FDA-approved drugs, links to products & services, and enroll in The National ALS Registry.
For People With ALS & Caregivers
Learn about The ALS Association’s grant program, upcoming scientific meetings, and opportunities to collaborate.
For Researchers
- New Education Guides Help to Lessen Fear, Uncertainty for Youngest Affected by ALS
March 11, 2019 - ALS Disability Insurance Access Act Reintroduced in 116th Congress
March 1, 2019 - Guest Post: Cherish Every Moment with Those You Love
February 26, 2019 - Looking Ahead: The Carmen Schentrup ALS Research Fund Inspires Hope and Progress Toward a Cure
February 21, 2019
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