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Newly Diagnosed

People who have recently received a diagnosis of amyotrophic lateral sclerosis often have questions about the disease, the prognosis and the treatments available. This Web site provides information to answer these questions and assist patients in finding additional resources.

It is also important to learn about your insurance coverage, healthcare facilities and how to obtain support for yourself and your family. This site provides a list of ALS Association Chapter-run support groups and affiliated healthcare facilities here.

You may want to contact your medical insurance provider and request that you be assigned a case manager to be your primary point of contact.

If you served in the military, contact the Department of Veteran Affairs (800-827-1000) about eligibility for health, vocational rehabilitation and disability programs and services.

Specific questions may also be answered by contacting your local chapter or calling the Patient Services specialists at The ALS Association National Office. The office is open every business day from 7:30 a.m. to 4 p.m., PST, at (800) 782-4747.

About the disease
Second Opinion
Patient Bill of Rights
Guide to Living a Fuller Life with ALS  
Living With ALS Manuals
FYI Fact Sheets
Information on Medicare Benefits and rilutek coverage through the Medicare Prescription Drug Benefit
Tips for Newly-Diagnosed ALS Patients from Will Hubben

 

Last revised 10/2008





Information for newly diagnosed

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Email:   alsinfo@alsa-national.org

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