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ALS Association Chapter Support Groups

Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness.  Support groups exist entirely for you, the person with ALS, and your family or loved ones.  Here is a list of some things ALS support groups provide:

  • A forum to share information and practical experience, whether it’s learning how to improve physical function, discussing new drug trials, or experiencing the latest augmentative technologies all geared to helping you live more fully with the disease.
  • A safe place to allow your emotions to speak for you.  The group offers an unparalleled opportunity to learn how other people cope with various problems similar to yours, to see that patients and family members are not completely unique, and that others experience the same type of feelings and emotions about the disease as you do.
  • An educational gathering spot where speakers and caregivers address subjects of major interest and exchange; how to incorporate physical and occupational therapy into your life; how to counteract problems in swallowing and chewing; safeguards that can help you avoid pulmonary complications; and ways of coping with depression and caregiver “burnout”, among many other topics.
  • A place to witness firsthand the constant miracle of people continuing to live productive, fulfilling lives in spite of having ALS.
                       -Source: Forbes Norris ALS Research Center

Find a support group

Free Standing Support Groups

The ALS Association's Free Standing Support Groups (FSSG) are affiliates of the Association. They are located in geographic areas not currently served by an ALS Association Chapter. The FSSGs are led by dedicated volunteers who give of their time to conduct the ALS support groups. Research information and educational materials are provided to the FSSGs by The ALS Association to share with the patients and family members attending the support group meetings.

Northern Utah  FSSG
Charity DeSpain
No Frills Diner   
North Ogden, UT 84404
Linda Ford

Puerto Rico FSSG
Santa Paula A13
Calle 4
Guaynabo, PR 00969
(787) 790-2358

The ALS Association - 1275 K Street NW - Suite 250 - Washington, DC 20005
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