The ALS Association

ALS Ice Bucket Challenge Progress

Displaying results 11 - 20 of 82 items found.

11. nplb_Veterans Benefits

(File; Thu Jan 27 12:04:00 CST 2011)

VETERANS’ BENEFITSMonth, DD, YYYYDear Senator/Representative:I am writing to express my concerns about the treatment of ALS as a service-connected disability by theDepartment of Veterans Affairs. Specifically, I am concerned that because...

Description: No Patient Left Behind Veterans’ Benefits

12. FYI Augmentative Communication

(File; Wed Jan 12 18:35:00 CST 2011)

Augmentative/Alternative CommunicationsWhen a person is being considered for an augmentative or alternative communication system, manyfactors must be considered. The factors presented here are the main ones, but certainly not the only on...

Description: FYI Augmentative Communication

13. registry_0610

(File; Thu Jan 13 20:23:00 CST 2011)

National ALS Registry UpdateJune, 2010The ALS Association is the leading organization championing the establishment of a national ALSpatient registry that will identify cases of ALS in the United States and collect information that willa...

Description: ALS Registry Update - June 2010

14. FYI Respite Care

(File; Wed Jan 12 19:52:00 CST 2011)

Family Caregiving-Why Respite?Being a family caregiver, while a fulfilling role, can consume a great deal of physical,mental and emotional energy. Consequently, respite care is very important because itgives family caregivers of persons ...

Description: FYI Respite Care

15. FYI Breathing Difficulties

(File; Wed Jan 12 19:45:00 CST 2011)

Breathing DifficultiesALS varies greatly from person to person and symptoms related to your breathing canstart early or much later. Weakness in the muscles of respiration (breathing) can lead to avariety of symptoms.Symptoms to Consider:...

Description: FYI Breathing Difficulties

16. nplb_home_safety

(File; Thu Jan 27 11:50:00 CST 2011)

GRANTS FOR HOME SAFETY IMPROVEMENTS Month DD, YYYY The Honorable (Insert Full Name)U.S. House of Representatives/U.S. Senate Washington, DC 20515/20510 Dear Representative/Senator (Insert Last Name): I am writing to you about an issue of...

Description: No Patient Left Behind Grants for Home Safety Improvements

17. DOD Signitures - Gates

(File; Thu Feb 03 15:50:00 CST 2011)

Members of the House of RepresentativesSigning “Price-Brown” Letter to Defense Secretary Robert Gates(Final List)1. AZ – Raul Grijalva2. AZ – Ed Pastor3. CA – Howard Berman4. CA – Lois Capps5. CA – John Doolittle6. CA – Sam Farr7. CA – E...

18. Workshop: Brain Biomarkers

(File; Thu Feb 03 23:18:00 CST 2011)

Advanced Courses & Scientific ConferencesBiomarkers for Brain Disorders: Challengesand Opportunities27 February–2 March 2011This exciting new Wellcome Trust Scientifc Conferencewill discuss methodological aspects of biomarkeridentifc...

Description: Brain Biomarkers Workshop, Feb. 2011

19. nplb_aa_benefits

(File; Thu Jan 27 11:48:00 CST 2011)

Veterans Aide and Attendant Benefits (INSERT Date) The Honorable (INSERT Full Name)U.S. Senate/House of RepresentativesWashington, DC 20510/20515 Dear Senator/Representative (INSERT Last Name):I am writing to ask you to support increasin...

Description: No Patient Left Behind Veterans’ Aide and Attendant Benefits

20. Registry Flowchart

(File; Thu Jan 27 20:28:00 CST 2011)

National ALS Registry FlowchartNationalDatabases*ApplyAlgorithmNationalALSRegistryNonALSPatientsPotentialALSPatientsTrueALSPatientsFollow-up* Medicare, Medicaid, VHA, VBAWeb PortalRegistrationValidationQuestionsTrueALSPatientsNonALSPatients

Description: ALS Registry Flowchart

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