FYI Fact Sheets from the Patient Services Department, National Office, The ALS Association

The following highlighted items are available on this web site in Adobe Acrobat format for viewing and printing.

Please click on a topic to propen.

Caregivers:

• Family Caregiving-Why Respite? 
• Oral care for the patient with ALS: A Guide for the Caregiver 
• For Caregivers Coping with Burnout 
• Cognitive Impairment for Families 

Benefits:

• The New Social Security Rules – Addressing Presumptive Disability for People Living with ALS 
• A Professional's Guide To Assisting Persons with ALS and Their Families with Obtaining Government Benefits 

Research/Clinics:

• ALS Association Certified ALS Centers
• ALS Clinics Affiliated with our Chapters
• Cognitive Impairment for Professionals
• Drug Development Update
• The ALS Association's Research Portfolio 
• H1N1 and Seasonal Flu Vaccine information 
• Epidemiology of ALS and Suspected Clusters 
• Nursing Management/Nursing Care Plans
• Donation of Tissue for ALS Research 
• Brain Computer Interface Technology 

Newly Diagnosed Patients:

• Tips for Newly-Diagnosed ALS Patients from Will Hubben
• Guide to Living a Fuller Life with ALS 
• Second Opinion FAQs 
• Patient Bill of Rights (for People Living with ALS) 
• Be a Careful Internet-User  
• Orthotic Devices 
• Dressing With Ease 
• Minimizing Fatigue 
• Information on Advance Directives 
• Criteria for Diagnosis 
• Genetic Testing 

People with ALS:

• Breathing Difficulties 
• Reasons For Living 
• Suspected Abuse 

Speech/Swallowing:

• To Cough or Not to Cough 
• Recipe for ENSURE Shake 
• Managing Excessive Saliva 
• Feeding Tubes 
• Slurred Speech  
• Augmentative/Alternative Communication 
• Rehabilitation Approach to Adaptive Devices 

For additional Fact Sheets currently available in hard copy only, please click here to order.