The ALS Consortium of Epidemiologic Studies (ACES) web site implemented by Stanford University epidemiologist Lorene Nelson, Ph.D. is meant to facilitate collaboration. The site includes standardized questionnaires and methods of data collection to investigate what environmental and lifestyle risk factors might contribute to ALS.
NINDS ALS Repository
The NINDS ALS repository of DNA from ALS patients, with available data, can be accessed through the web site of the Coriell Institute for Medical Research (http://ccr.coriell.org/ninds/), with SNP data specifically at https://queue.coriell.org/Q/snp_index.asp.