The ALS Association
Carrie Munk
The ALS Association



The Association’s Statement on Stem Cell Research

Washington, D.C. (August 26, 2014) - The ALS Association’s vision is to create a world without ALS.  To that end The Association is committed to leaving no stone unturned in the quest to discover effective treatments and a cure for Lou Gehrig’s Disease.

The Association believes that stem cell research is an evolving field that holds the potential to provide benefit to people with ALS in the future.  The pursuit of stem cell research with appropriate scientific review and ethical guidelines directly furthers the mission of The ALS Association in finding a cure for and improving living with ALS.

The ALS Association primarily funds adult stem cell research. Currently, The Association is funding one study using embryonic stem cells (ESC), and the stem cell line was established many years ago under ethical guidelines set by the National Institute of Neurological Disorders and Stroke (NINDS); this research is funded by one specific donor, who is committed to this area of research.  In fact, donors may stipulate that their funds not be invested in this study or any stem cell project.

Many labs have replaced ESCs with induced pluripotent stem cells (iPS cells).  These iPS cells begin as adult human skin cells but are then reprogrammed to become stem cells, which are then ready to become other cells types.

Visit to learn more about stem cell research.

About The ALS Association
The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front.  By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through Certified Treatment Centers of Excellence, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.  For more information about The ALS Association, visit our website at

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