The ALS Association

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Brian Frederick
The ALS Association
(202) 464-8612



Representative Seth Moulton Awarded the Jacob Javits Public Service Award by The ALS Association

Washington, D.C. (May 15, 2017) — The ALS Association is pleased to award the 2017 Jacob Javits Public Service Award to Representative Seth Moulton (D-MA 6th District) for his commitment to people living with ALS and their families. This award acknowledges a public servant’s efforts in raising awareness on Capitol Hill of ALS as well as the challenges that people living with ALS and their families face every day.

ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. People with ALS lose the ability to initiate/control muscle movement, which generally leads to paralysis and death within two to five years of diagnosis.

Barbara Newhouse, President and CEO of The ALS Association noted “At the national and state level, his leadership has achieved results and raised awareness of the need for better services and more research for people living with ALS.”

Representative Seth Moulton was first elected to Congress in 2014 and quickly became a champion for people living with ALS. Rep. Moulton, a former Marine, has strongly supported bipartisan efforts to secure annual appropriations of $10 million for ALS Research at the Department of Defense to discover why veterans are twice as likely as the general population to develop ALS. Rep. Moulton has also consistently supported appropriations for has also consistently supported appropriations to fund the National Institute of Health (NIH) and the ALS Registry at the Centers for Disease Control and Prevention - both part of the Department of Health and Human Services.

In addition to supporting medical research to discover future treatments and a cure, Rep. Moulton understands that patients who are courageously battling debilitating diseases like ALS need help today. That’s why Rep. Seth Moulton introduced H.R. 1171, the ALS Disability Insurance Access Act, in the House of Representatives. This legislation, which has strong bipartisan support, would waive the five-month waiting period that people with ALS must endure prior to receiving their Social Security Disability Insurance benefits and Medicare.

Rep. Seth Moulton, who has a personal friend with ALS, has consistently demonstrated his commitment to people living with ALS and to ALS research. He works closely with the ALS Massachusetts Chapter and the National ALS Association on a wide range of issues.

Rep. Moulton serves on the House Armed Services Committee and Budget Committee.

About The ALS Association
The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. For more information about The ALS Association, visit our website at

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