The ALS Association

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Carrie Martin Munk
The ALS Association
(571) 319-3047



The ALS Association President and CEO Announces Retirement

Washington, D.C. (August 1, 2013) — Today, the President and CEO of The ALS Association, Jane H. Gilbert, announced her intention to retire from the organization effective July 1, 2014. Per the request of its Board of Trustees, Gilbert will be actively participating in the nationwide executive search for her replacement and will continue in her present role until a replacement is named.

ALS (amyotrophic lateral sclerosis), also referred to as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Eventually, people with ALS lose the ability to initiate and control muscle movement, which often leads to total paralysis and death within two to five years of diagnosis. There is no cure and only one drug approved by the U.S. Food and Drug Administration (FDA) that modestly extends survival. 

“I want to personally thank Jane for her past and future leadership. She has brought considerable stability to The Association at the national office and in the chapter network,” said Bill Thoet, Chairman of the Board of Trustees. “Jane’s involvement in the search for her replacement is essential to ensuring a smooth transition of leadership as we all work to continue to drive organizational priorities forward.” 

Gilbert joined The ALS Association in 2009 during a financially precarious time for the nation and especially for nonprofits that depend on donor dollars. 

“My work at The ALS Association has offered me the most rewarding experiences of my career, and I am incredibly thankful to have had this opportunity. I feel that I will be leaving The Association in a stable and productive place, and I am confident that this positive momentum will continue under new leadership,” said Gilbert. 

The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front: through research, education and advocacy.

“People living with this disease have fueled my personal resolve to remain committed to the mission of The ALS Association. While I am retiring from the workforce next year, I fully intend to stay involved as a volunteer, an annual donor, and a proud member of the Legacy Society until an effective treatment and a cure is found for ALS,” Gilbert continued.  

About the ALS Association
The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front.  By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.  For more information about The ALS Association, visit our website at

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