The ALS Association

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Carrie Munk
The ALS Association
(571) 319-3047



The ALS Association Funds Five New Grants in Clinical Care Management and Data Collection

Washington, D.C., (February 5, 2016) — Today, The ALS Association is pleased to announce its support for four new clinical management grants that will address the gaps in amyotrophic lateral sclerosis (ALS) clinical care whose funding collectively totals to $655,855. We are also proud to announce one new ALS Association-Initiated grant awardee whose project is to streamline data collection at ALS clinics for funding of $100,000.

ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Eventually, people with ALS lose the ability to initiate and control muscle movement, which often leads to total paralysis and death within two to five years of diagnosis. For unknown reasons, veterans are twice as likely to develop ALS as the general population. There is no cure, and only one drug approved by the U.S. Food and Drug Administration (FDA) modestly extends survival.

ALS Association-Initiated Grants
The ALS Association defined areas of specific focus for research and invited experts in their respective fields to submit proposals. The ALS Association convenes a review board to discuss proposals and makes selections based on the merits of each one. The newly funded ALS Association-Initiated Grant include:

Robert Miller, M.D., Sutter West Bay Hospitals, ALS Forbes Norris MDA/ALS Research Center, San Francisco.
Topic: Establishing uniform methods of data collection in ALS centers that use Epic software for their electronic health record and documentation
Award: $100,000 over nine months

TREAT ALS™ Clinical Management Grants
The aim of the TREAT ALS™ Clinical Management Grant Program is to improve care of people living with ALS with a focus on clinical, psychological and/or social management of ALS. Examples of relevant clinical management studies for this mechanism include, but are not limited to, the following: studies that address gaps in delivery of care; studies that explore and develop telemedicine for the care of individuals with ALS; psychological interventions in ALS to address the significant mental health issues facing ALS patients and caregivers; nutritional and respiratory interventions; development of novel endpoints for clinical trials; and studies to address the needs of caregivers. The newly funded TREAT ALS™ Clinical Management Grants include:

Orla Hardiman, M.D., Trinity College and Beaumont Hospital, Dublin; Miriam Galvin, Ph.D., Dublin City University, Dublin; Niall Pender, Ph.D., Trinity College and Beaumont Hospital, Dublin; and Tom Burke, Trinity College, Dublin.
Topic: Defining and addressing the complex needs of ALS caregivers
Award: $199,984 over two years

Stephen Selkirk, M.D., Ph.D., and Broderick Flynn, R.N., Louis Stokes Cleveland VA Medical Center, Cleveland.
Topic: Utilizing Telehealth technologies to manage the ALS patient
Award: $58,320 over two years

Emily Plowman, Ph.D., University of Florida, Gainesville, Fla., and Clifton Gooch, M.D., University of South Florida, Tampa, Fla.
Topic: Impact of combined inspiratory/expiratory respiratory training in ALS
Award: $200,000 over two years

Zachary Simmons, M.D. and Andrew Geronimo, Ph.D., The Pennsylvania State University College of Medicine, Hershey, Pa.
Topic: New opportunities for patients with brain-computer interface communication
Award: $197,551 over two years

Full descriptions of the research projects are located here.

The ALS Association’s current call for new Investigator-Initiated Awards and Milton Safenowitz Postdoctoral Fellowship Awards is now closed and in progress. Click here for more information.

About The ALS Association
The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front.  By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.  For more information about The ALS Association, visit our website at

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