The ALS Association

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Carrie Munk
The ALS Association
(571) 319-3047



The ALS Association Board of Trustees Names Barbara Newhouse as President and CEO

Washington, D.C. (May 2, 2014) — William A. Thoet, Chairman of the Board of Trustees of The ALS Association, announced today that Barbara Newhouse has been named President and CEO of The Association after an extensive nationwide search. She will begin work on June 2, 2014.

ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Eventually, people with ALS lose the ability to initiate and control muscle movement, which often leads to total paralysis and death within two to five years of diagnosis.

The ALS Association, and its network of 38 chapters nationwide, is the only national non-profit organization fighting Lou Gehrig’s Disease on every front: through research, public policy and care services. 

“The Board was truly impressed with Barb’s interest in and passion for our cause,” said Thoet. “We are thrilled to capitalize on her rich background in nonprofit management to propel our mission forward.” 

Newhouse has had an impressive career in working for some of the most recognizable nonprofit organizations in the country in various leadership roles and levels of responsibility. She presently serves as President and CEO of the Arthritis Foundation, Mid-Atlantic Region. Prior to that she was the COO for the Autism Society and spent many years with both the American Cancer Society and the Alzheimer’s Association.

She has worked at both nonprofit chapters and national offices and has gained impressive experience in change management, board governance, fund raising and public affairs.

“I believe there is incredible potential around ALS—to raise more money to care for more people and to fund more research to find treatments and a cure for this disease,” said Newhouse. “I’m so proud to have been selected as President and CEO and look forward to working on behalf of everyone affected by ALS.”

Barb is replacing Jane H. Gilbert, who announced her retirement last year and will be assisting with the leadership transition.

About The ALS Association
The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front.  By leading the way in global research, providing assistance for people living with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified and recognized treatment centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.  For more information about The ALS Association, visit our website at

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