The ALS Association

Ice Bucket Challenge Progress

Advocacy Conference Produces Results

May 25, 2011

Thank you to everyone who participated in National ALS Advocacy Day in Washington DC and to the thousands of others who participated in our Virtual Advocacy Day. Your efforts to tell the ALS story in meetings and emails have made a difference!

Senator Lisa Murkowski addresses the crowd at the 2011 National Advocacy Day.

Nearly 50 Members of Congress signed onto the ALS Registry Dear Colleague letter urging the Appropriations Committee to provide $10 million for the Registry next year. That's almost 15 more Members than last year! What's more is that 65 Members signed onto the letter supporting $15 million in funding for the ALS Research Program at the Department of Defense.  Generating this level of support -- for both of these programs - is a tremendous accomplishment and a testament to the effectiveness of your outreach. It is especially significant considering the economic and political climate on Capitol Hill, a time in which Congress is seeking to cut and eliminate programs, not increase funding.

While these are great results, the fight this year has only just begun. There will be additional opportunities to make your voices heard in the weeks and months ahead so please keep an eye out for our Action Alerts. We will let you know when your outreach to Congress can make the most difference. If you would like to know whether your Members of Congress signed these letters, please contact us at

Advocacy Conference Photos Available

Hundreds of photographs were taken during the Advocacy Conference that capture the emotion, enthusiasm and power of the three day event. Click the following link to take a look and you can view and download them free of charge (for the next 90 days) at  Please use the password Gehrig (case sensitive).  A link to the photos also will be available on the Advocacy Day section of The ALS Association website,

Did you take photographs during the Conference? If so, please share them on our Facebook page,, and let others see the power of your experience in Washington!

Thank you again to everyone for your continued efforts. Together we are making a difference and we are helping to create the roadmap that will lead to a treatment and cure for ALS.

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