The ALS Association

Ice Bucket Challenge Progress

2014 Advocacy Day: Participate From Anywhere

May 1, 2014

The 2014 Advocacy Day and Public Policy Conference is only one week away!  For those of you who are coming to Washington, DC we hope you are as excited as we are!  If you are unable to attend the Public Policy Conference in-person, there are plenty of ways you can still participate, such as through our Virtual Advocacy Day, following us on Twitter, or viewing the live video of some sessions.  Please keep an eye out for more details of the Virtual Advocacy Day once the conference begins on May 7.  

Follow us on Twitter @ALSPublicPolicy to stay informed and learn what you can do to make a difference from home.  We encourage you to follow your fellow advocates from your Chapter and join the conversation by using our conference hashtag #ALSA14.  Along with using our conference hashtag, we recommend everyone add our Twibbon to your social media profiles to show our unified voice as ALS Advocates.  Please add the “ALS Advocate” Twibbon to your Facebook and/or Twitter page in a quick and easy two-step process by visiting    

Live Video Stream from the Conference
We are excited to offer live video coverage of several important conference sessions to those unable to attend.  Please tune into our Facebook Page or Ustream page to watch the following sessions:

Wednesday, May 7
2:00 – 3:45 PM EST: The Welcome Remarks/Government Research Session will kick off the conference and include presentations about the National ALS Registry and the Department of Defense’s ALS Research Program.

Friday, May 9
9:00 – 10:15 AM EST: The ALS Association Research Session will be presented by our Chief Scientist, Dr. Lucie Bruijn, who will discuss The Association’s TREAT ALS Program and the latest in ALS research.
10:30 – 11:45 AM EST: During the ALS Clinical Trials Session you will learn the most recent news about clinical trials underway.

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