Continuum of ALS Care

Improving End-Of-Life Care

In an effort to improve palliative care for people with ALS, the Promoting Excellence in End-of-Life Care National Program of the Robert Wood Johnson Foundation released a report that details optimum end-of-life care, the current state of this care, and what can be done to close the gaps between the two.

As part of a larger project studying palliative care for people with terminal illnesses, the ALS Peer Workgroup was established to identify topics and issues that pertain specifically to end-of-life care in ALS, including psychosocial care, bereavement, spirituality, quality of life, caregiver issues, communication skills, ethics, decision making, symptom management, access to care, costs of care and knowledge/education.

The ALS Association is honored to have played a role in the development of such an important project and is optimistic about the impact that this report will have on palliative care policy, education and practice.