#VoiceYourLove - The ALS Association
Voice Your Love
for ALS Heroes

A site to honor the lives of those we have lost and those still fighting.

My ALS story

Heather T. Worcester, Massachusetts

I didn't realize how ALS was going to affect my life until my grandma was diagnosed when I was 30, she was 73. She was the 26th in our family to die from FALS. My mother was the next @ 54, my aunt @ 59, & my last aunt @ 56. I'm 48 3/4 old, recently my shoulder & neck have been aching, for no reason. I'm getting quite nervous knowing what could be in store for me and how it's going to affect my children, my S.O., & my friends. Not only do I have to go thru the suffering so don't they. I'm procrastinating going to get tested but regardless I can't change the results @ 50/50%. To others facing or dealing with this disease, I wish you all the best.