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Respite Care Program Reestablished

Louisiana/Mississippi Chapter

Serving people living with ALS in: Louisiana and Mississippi

The ALS Association Louisiana-Mississippi Chapter received more than $200,000 in donations from the Ice Bucket Challenge. The chapter used part of these funds to reestablish its respite care program which had been previously suspended due to lack of resources. The program, which provides relief to family caregivers, was even expanded to serve more families than before.

The chapter also used the funds to strengthen its advocacy efforts. Whereas in previous years the chapter held an ALS awareness day, this year it was able to send ALS patients, their families, and caregivers to meet in-person with state legislators. The chapter was also able to send more ALS patients to attend the annual Public Policy Conference in Washington, D.C., where they met with Members of Congress and their staff to raise awareness of the disease and help advance legislation to improve the lives of people with ALS. 

Additionally, the chapter replenished its care support fund which helps people with ALS pay for out-of-pocket expenses like home modifications or van repairs. For ALS patients in Northern Mississippi and Northeastern Louisiana, the chapter launched new support groups hosted by chapter care coordinators

Myron “Lance” Barney using a communication tool provided by the chapter.

Free Private Caregiver Training Offered

Western Pennsylvania Chapter

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Financial Assistance Offered Ahead of Schedule

Iowa Chapter

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Equipment Loan Closet Restocked and Expanded

Oregon and SW Washington Chapter

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