The ALS Association Help Find A Cure


Respite Care Program Reestablished

Louisiana/Mississippi Chapter

Serving people living with ALS in: Louisiana and Mississippi

The ALS Association Louisiana-Mississippi Chapter received more than $200,000 in donations from the Ice Bucket Challenge. The chapter used part of these funds to reestablish its respite care program which had been previously suspended due to lack of resources. The program, which provides relief to family caregivers, was even expanded to serve more families than before.

The chapter also used the funds to strengthen its advocacy efforts. Whereas in previous years the chapter held an ALS awareness day, this year it was able to send ALS patients, their families, and caregivers to meet in-person with state legislators. The chapter was also able to send more ALS patients to attend the annual Public Policy Conference in Washington, D.C., where they met with Members of Congress and their staff to raise awareness of the disease and help advance legislation to improve the lives of people with ALS. 

Additionally, the chapter replenished its care support fund which helps people with ALS pay for out-of-pocket expenses like home modifications or van repairs. For ALS patients in Northern Mississippi and Northeastern Louisiana, the chapter launched new support groups hosted by chapter care coordinators

Myron “Lance” Barney using a communication tool provided by the chapter.

Quarterly Grant Program Initiated to Offset Medical Costs

Northern Ohio Chapter


Online Support Groups Built for Patients and Caregivers

Connecticut Chapter


Nutrition Supplement Program Developed to Aid Patients

Indiana Chapter


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