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Nutrition Supplement Program Developed to Aid Patients

Indiana Chapter

Serving people living with ALS in: Indiana

The Ice Bucket Challenge brought awareness and funds that increased The ALS Association Indiana Chapter’s ability to serve its patients. For instance, the chapter developed a Nutrition Supplement Program that educates and provides nutritional resources to people with ALS and their families, including those that are home-bound. The additional funding has also allowed the chapter to expand its Loan Equipment Closet and hire two full-time Care Services Coordinators and one part-time coordinator to cover the entire state. These coordinators provide in-home assessments and resources to people with ALS and their families, along with emotional support. 

Additionally, the chapter now has a Respite Program that provides funding to help with a portion of the in-home care cost for families that do not have the means to obtain these services. The funds will help around 25 families a year. 

The chapter has also expanded the financial support it provides to the ALS Certified Clinic at Indiana University Neuroscience Center and has provided a representative to attend the Veterans Affairs ALS Clinic as a resource for their patients. The chapter’s focus for the future will be on providing additional programs to support families with younger children

Online Support Groups Built for Patients and Caregivers

Connecticut Chapter

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Number of Clinics Increased to Serve New Patients

Rhode Island Chapter

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New Patient Grants Made Available

Florida Chapter

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