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Grant Program Established to Help Cover Patient Costs

Central & Southern Ohio Chapter

Serving people living with ALS in: Central & Southern Ohio Chapter

As a result of the donations received during the Ice Bucket Challenge, The ALS Association Central & Southern Ohio Chapter will be able to provide more services and increase its work for people with ALS and their families. 

Recognizing that the cost of caring for a person with ALS can have a devastating impact on a family, the chapter will implement a Patient Grant Program to reimburse patients for direct expenses related to managing their disease, up to a specified maximum. Examples of these expenses include insurance co-payments, the cost of respite care, and handicapped transportation to medical appointments. 

The chapter is also purchasing additional equipment (including speech generating devices) that people with ALS can borrow to improve their quality of life, and is planning on expanding the Care Service team of healthcare professionals who interact daily with people with ALS and their caregivers.

Additionally, the chapter kicked off ALS Awareness Month in May with its first-ever research presentation. During this event, four local ALS researchers provided an update on their work to people with ALS, their caregivers, former caregivers, and donors.

Speakers at the Chapter’s first-ever research presentation. L-R: Brian Kaspar, Ph.D.; Stephen Kolb, M.D., Ph.D.; Marlin Seymour, executive director of The ALS Association Central & Southern Ohio Chapter; Barbara Newhouse, president & CEO, The ALS Association; Christine Beattie, Ph.D.; and Arthur Burghes, Ph.D.

People with ALS, their caregivers and donors listen to updates at the Chapter’s research presentation.

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Louisiana/Mississippi Chapter

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Quarterly Grant Program Initiated to Offset Medical Costs

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