Media

What is The ALS Association?
The ALS Association is the only national not-for-profit health agency dedicated solely to the fight against ALS. The mission of The ALS Association is to lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.

Where is The ALS Association located?
The ALS Association's National Office is headquartered in Washington, DC. The Association has a nation-wide network of chapters and several dozen free standing support groups located throughout the United States carrying out the mission and activities of the organization at the local level. The ALS Association has representation in over 50 of the major markets in the United States.

What is an ALS Association Certified CenterSM?
The nationwide network of ALS Association Certified CentersSM are distinguished regional centers that have been recognized by The ALS Association as the best in the field with regard to knowledge about and experience in ALS. To become certified as an ALS Association CenterSM, an ALS clinic must achieve national prominence, meet rigorous clinical care standards, and pass a comprehensive site inspection.

Does The ALS Association fund ALS research?
The ALS Association is the largest private source of funding for ALS-specific research in the world. Over the last decade, we have committed close to $48 million to ALS research, seeking to identify the cause, means of prevention, and cure for ALS. The Association is currently overseeing approximately 100 different and diverse research projects. Through its world-class research program, The ALS Association is leading the search for a cure for ALS.

Who oversees the work of The ALS Association?
The ALS Association is governed by voluntary leadership, including:

  • National Board of Trustees, composed of noted leaders in business, science, law and medicine from around the U.S. with a dedication to help find answers to ALS.
  • Chapter Board of Trustees, composed of individuals who represent the local community in which they serve.
  • Medical Advisory Committee composed of neurologists and multidisciplinary team professionals representing such areas as nutrition, physical therapy and pulmonology.
  • Scientific Review Committee composed of a group of renowned scientists from the ALS arena and other relevant fields of study who evaluate applications for The ALS Association research grants.

Who is the official spokesperson for The ALS Association?
The ALS Association relies on a variety of spokespeople to tell the ALS "story." In addition to clinical and scientific experts on staff, we often turn to our many friends and partners in the medical and scientific fields to help convey an understanding of the many fronts on which The ALS Association is fighting this disease.

To arrange for an interview with an ALS Association representative, please contact The ALS Association Media Relations department:
818-880-9007 x. 243 or
202-407-8580 x. 592
E-mail: mediarelations@alsa-national.org

Where can I find information on recent advancements in ALS treatment options?
The ALS Association website contains breaking news and clinical updates about ALS. Check our News Archive for more information. To subscribe to The ALS Association's electronic mailing list, click here.

How can people get more information about ALS and The ALS Association?
The ALS Association has a toll-free information and referral service available to patients, caregivers and family members, staffed by The ALS Association Patient Service Coordinators. The ALS Association Information and Referral number is 1-800-782-4747. To reach The ALS Association's Patient Services department by e-mail, contact alsinfo@alsa-national.org. All media inquiries should be directed to The ALS Association's Media Relations department, 818-880-9007, x241 (mediarelations@alsa-national.org).

Powered by Blackbaud
nonprofit software