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Communication and Assistive Technology Index Page

An Overview of ALS and Assistive Technology

By Alisa Brownlee, ATP
Clinical Manager, Assistive Technology Services, ALS Association Greater Philadelphia Chapter and Assistive Technology Consultant to the National ALS Association.

Most patients with ALS experience difficulty with speech and movement during the course of their illness.  Some PALS (persons with ALS) will completely lose their ability to speak and to use their hands.  The inability to speak is frustrating and emotionally devastating.  My job is to use technology to get an ALS patient communicating so they can be an active participant in their family and community life, become more independent, and make medical decisions.  There are many different electronic communication devices on the market.  Some devices just speak for the person and some are desktop or laptop computer that not only speak for the person but also allow the user to have full access to computer functions.  The easiest way to describe a communication device is that the user types on a traditional keyboard and a computer-synthesized voice repeats everything the user types into the device. 

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Prescription Drug User Fee Act includes provisions that could help expedite the approval of new treatments for rare diseases like ALS.

Advocacy Day 2011

Advocacy Conference Produces Results

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Thank you to all who participated in National ALS Advocacy Day 2011 in DC and to the thousands of others who participated in our Virtual Advocacy Day.

Budget Provides $8 Million for ALSRP!

April 18, 2011

Thank you to everyone who contacted their Members of Congress urging them to support the DOD's ALS Research Program

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Help Save the Department of Defense ALS Research Program

March 30, 2011

Contact Congress today to urge them to continue funding this vital program!

The Greater Philadelphia Chapter implemented an innovative Assistive Technology Program in 1993.  I have been with the Chapter since 1996 and for the past fourteen years, have seen assistive technology significantly improve the lives of those living with ALS.  When I first started at the Chapter, people with ALS were using communication software that was only available in MS-DOS.  It was until 1998 that communication software became available in a Windows format. Technology has continued to change and morph as the years pass and now people with disabilities have many choices that can help them communicate. 


More in this Section

Assistive Technology Educational Series

Assistive Technology Educational Series and other webinars for People with ALS and Caregivers

Augmentative Communication

Medicare Coverage of Speech Generating Devices (SGD)

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