The ALS Association

ALS Ice Bucket Challenge Progress

Facilities Accepting Brain and Spinal Cord Tissue for ALS Research 


Human Brain and Spinal Fluid Resource Center
Gift of Hope Program (127A)
Building 212, Room 16
VAGLAHS, West LA Healthcare Center
11301 Wilshire Blvd
Los Angeles, CA 90073
Phone: 310-268-3536
Fax: 310-268-4768
24-hour pager: 310-636-5199
Director: Rashed M. Nagra, PhD
Founding Director: Wallace W. Tourtellotte, MD, PhD
Study Coordinator: Regina Schuyler Silverman

UC San Diego School of Medicine
Department of Neurosciences
John M. Ravits, Prof of Clin Neuroscience
MTF Rm. 153 or 131 MC: 0624
Phone: 858-246-1154
Mailing Address:
9500 Gilman Drive # 0624
La Jolla, CA 92093-0624


University of Miami Brain Endowment Bank
1501 NW 9th Ave
2202 Life Science Bldg I
Medical Campus, Locator: D4-5
Miami, FL 33136
Phone: 1-800-UM-BRAIN (1-800-862-7246) or 305-243-6219
Founder and Director: Dr. Deborah C. Mash

Mayo Clinic Department of Neurology
4500 San Pablo Road
Jacksonville, FL 32224
24-hour Contact #: (904) 953-2000
Catherine Ruiz – 904-953-6523 -
(This institution is limited in the donations they are able to receive)


University of Kentucky
Department of Neurology
740 South Limestone Street
Kentucky Clinic, L445
Lexington, KY 40536-0284
Kathie Vanderpool, RN, BS, CCRP
Tel: 859-218-5064
Fax: 859-257-5477


Johns Hopkins University
Department of Neurology
Kathleen Wilsbach (
Kathy Gallo (
885 N. Wolfe St., Rm 248
Baltimore, MD 21205
Phone: 410-614-7941
Fax: 410-502-5459

The University of Maryland Brain and Tissue Bank
University of Maryland, Baltimore
Division of Pediatric Research
655 W. Baltimore Street, Rm 13-013 BRB
Baltimore, MD 21201-1559
Director: H. Ronald Zielke, PhD
Phone: 800-847-1539 or 410-706-1755
Fax: 410-706-2128 and


Massachusetts General Hospital
165 Cambridge Street, Room 617
Boston, MA 02114
Jennifer L Scalia, RN, BSN, Nurse Manager for ALS Clinic/Neurology Clinical Research Institute
Phone: 617-726-0316
Fax: 617-643-2590
This program does retrieve brain and spinal tissue only from patients within driving distance. On very rare occasion sometimes, but not always they are able to arrange a retrieval be done elsewhere, with the tissue coming to them.

VA Boston Healthcare System
Department of Veterans Affairs Biorepository Brain Bank
VA Boston Healthcare System (151C)
150 S. Huntington Avenue
Boston, MA 02130
Contacts: Sally Perkins, MS, PT
Latease Guilderson, MSW
Christopher Brady, PhD
Toll-free: 866-460-1158
(This institution accepts donations from any Veteran in the U.S.)

New York

Columbia University Medical Center
The Eleanor & Lou Gehrig ALS Center and The Center for Motor Neuron Biology and Disease
630 West 168th Street
New York, NY  10032
Neil Shneider, MD, PhD, Assistant Professor of Neurology


Drexel University College of Medicine
Medical Director: Terry Heiman-Patterson, MD
Mary Paolone, MSRN, Nurse Manager/Clinical Nurse Counselor
MDA/ALS Center of Hope
Mobile: 610-733-5573
Office: 267-507-2590
Fax: 215-399-5894

National Disease Research Interchange (NDRI)
8 Penn Center, 15th Floor
1628 JFK Boulevard
Philadelphia, PA 19103
Thomas J. Bell, PhD
Director of Scientific Services
Phone: 800-222-NDRI (6374) ext. 247

Penn Comprehensive Neurosciences Center
ALS Center at Pennsylvania Hospital
330 South 9th Street
Philadelphia, PA 19107
Clinical Research Coordinator: Kelly L. Almasy, RN, CRC
Phone: 215-829-5041
Fax: 215-829-6606
Medical Director: Leo F. McCluskey, MD, MBE
Associate Medical Director: Lauren B. Elman, MD
(This institution is only accepting donations for individuals who have been seen in their center)

University of Pittsburgh School of Medicine
Center for ALS Research
UPMC Presbyterian, F875 (HPU 01 08 06)
200 Lothrop Street
Pittsburgh, PA 15213
Phone: 412-647-1706
Fax: 412-647-8398
Director: David Lacomis, MD
(This institution is only accepting donations for individuals who have been seen in their center)


Baylor College of Medicine
One Baylor Plaza
Houston, TX 77030
Phone: 713-798-5694
Medical Director: Yadollah Harati, MD
Claire Johnson MacAdam, P.T., N.C.S., Clinic Coordinator and Physical Therapist

A resource for organ and tissue donation other than brain and spinal cord tissue (Musculoskeletal tissue, abdominal organs, skin, tendons, bone):

Center for Organ Recovery and Education (CORE)
204 Sigma Drive
Pittsburgh, PA  15238
Phone: 800-DONORS-7 (1-800-366-6777)
Fax: 412-963-3563

A resource for whole body donation only, supporting medical research in ALS:

Bio Gift Anatomical and Surgical Education Center
17819 NE Riverside Parkway, Suite C
Portland, OR 97230
Julie Brethauer, Donor Coordinator
Office – 503-670-1799
24 hour – 866-670-1799
Fax: 503-670-1834

Updated 3/2015

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