ALS Registry Resources
Webinars, Presentations, and Videos
The ALS Association has hosted several webinars and presentations leading up to the launch of the ALS Registry’s online web-portal that allows people with ALS to self enroll in the Registry. This section of The ALS Association’s ALS Registry website will include the latest presentations, videos and other electronic media about the Registry.
National ALS Registry Update, The ALS Association & Agency for Toxic Substances and Disease Registry Webinar presentation:
https://alsa.webex.com/alsa/ldr.php?AT=pb&SP=MC&rID=60697332&rKey=7f48b8861c3e0651
This webinar provided latest news on the Registry as the Agency prepared to launch the Registry’s online web portal, which will permit people with ALS to self-enroll in the Registry. The webinar also featured:
- Background information and an update on the implementation of the Registry and web portal;
- A preview of the online web-portal that PALS will access to enroll in the Registry;
- Information about The ALS Association resources that will be available to people with ALS and families, including online resources; and
- Questions and answers about the Registry.
National ALS Registry Flow Chart
From the Agency for Toxic Substances and Disease Registry
This chart diagrams how the National ALS Registry will identify cases of ALS across the country utilizing national databases, like those at Medicare and the Veterans Administration, and the self-enrollment web portal.
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