The ALS Association

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Charles J. Robinson, D, Sc., P.E.

Professional Position: Director
Company: Center for Rehabilitation Engineering, Science and Technology Clarkson, University
Location: Potsdam, NY
c-robinson

Dr. Charlie Robinson lost his high school sweetheart and wife Rosemary of 39 years to bulbar ALS in 2008. As the principle caregiver for his wife during her 3-year battle with the disease he brings to the Board of Trustees insight into that role and to the needs of those living with the disease. After the onset of her symptoms, they travelled 20,000 miles throughout the USA on a farewell tour, continually using more and more assistive technology.

Robinson also adds his proven leadership skills as a volunteer in other federated volunteer societies and additionally brings to the Board his extensive background in research and care services for those with neurological diseases and trauma. He has served on the Care Services Committee of The Association and in November, 2016 at the ALS Clinical Care Conference he presented a well-received tutorial paper entitled, “Rectangularizing Quality of Life During the Progression of ALS.” He currently serves as a member of the Board of Governors of the Upstate New York Chapter of The Association. He also co-chairs a community partner for ALS golf tournament held each August at the Highland Greens Golf Course in Brushton, NY.

Robinson spent over 30 years in various locations within the US Department of Veterans Affairs Health Care System where he served veterans with disability. He retired at the end of 2011 as a VA Senior Rehabilitation Research Career Scientist. He was the founding Chair of the Department of Rehabilitation Science and Technology at the University of Pittsburgh and the founding Editor of the IEEE Transactions on Rehabilitation Engineering. As the Shulman Endowed Professor, he now directs Clarkson’s Center for Rehabilitation Engineering, Science and Technology, where he continues his efforts to aid those with disability. For these efforts, he was recently awarded the St. Lawrence NYSARC’s Community Service Award.

Robinson received his B.S. (magna cum laude) in Engineering Science at the then College of Steubenville in Steubenville, Ohio, his M.S. in Electrical Engineering from Ohio State University, and his D.Sc. in Electrical Engineering from Washington University in St. Louis, Missouri, where he was also trained as a neuroscientist and did fundamental neuroscience research. He later was a Postdoctoral Associate in the Department of Anesthesiology at Yale University School of Medicine in New Haven, Connecticut. He is a Fellow of the IEEE and of AIMBE, and a U.N.E.S.C.O. Academician. He recently hung up his cleats after a long career as a soccer referee and referee assessor.

He currently resides in Norfolk, New York with his wife Katheryn. Between them, they have 8 grown children and 19 grandchildren. They both are Commissioned Lay Ministers in their Diocese.

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