The ALS Association

This October Will Be 10 Years Since Scott's Diagnosis

Kelly M. Bradenton, Florida

October 2004 was when we found out that my brother Scott had been diagnosed with ALS. He had been being treated for what they thought was Lyme disease. At the time of his diagnosis, his children were ages 9, 13 and 15. He told his Doctor that despite his being given two to three years for survival all he wanted was to be able to see his youngest child Jordyn graduate high school. They were not optimistic. Today, Jordyn is in her second year of college. Scott's wife, Kathy, is a RN. They just celebrated their 34th wedding anniversary. I credit her for a lot of the reason Scott is still with us. She has taken amazing care of him. Up until a year or so ago, he was still walking great distances (climbed seven mountain ranges in New England since his diagnosis) talking and eating solid food. He was the first person in New England to receive a pacemaker implant for his diaphragm. It has saved him from being put on a ventilator. Shortly after he was diagnosed, he removed all of his metal fillings because he had found some research that attributed certain metals to be a contributing factor. Life has not been easy for Scott or his family. This October will be 10 years since his diagnosis. He still walks but now uses a wheel chair for longer periods; he is using his feeding tube most of the time, but still has his breakfast, and he still loves to talk and tell stories although it has become increasing difficult to understand him. None of us know how much time anyone has; there are no guarantees. Every day we get a little bit closer to an answer. I hope we see one soon. Until then, I will continue to raise awareness through walks and fundraisers in my brother's name. His fight and his will to live are a true inspiration! Love you brother!

 
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