The ALS Association

Those Battling ALS Serve as Sources of Inspiration for Me

Diana P. Orlando, Florida

My aunt, Enid, lived with ALS as graciously as she could, given the circumstances ALS presents to one and their families. Her passing, which happened 11 years ago this year, sparked something in me to want to do more. Seeing her and her family go through such a tumultuous time in dealing with her diagnosis, watching her progression, and then ultimately having to say goodbye to her, made me want to take action. At the time, I wasn't sure what that meant. After researching ways to get involved, I found a local Walk to Defeat ALS and became a huge supporter in any way I could: raising money, getting friends and families to come and join me at my local Walk or simply just having conversations about what ALS is and what it means to live with it. Years later, I still have that same need to raise awareness and funds, but I get to do it through The ALS Association Florida Chapter as their Regional Development Manager in Central Florida and Sarasota. In meeting many patients, families, and community partners these past three years, I know that families like mine are not alone and that our Chapters nationwide are working hard to serve patients and their families, connecting them to the resources they need and offering support in both intangible and tangible ways. I also have such a deep appreciation for the families that work alongside us, who share our passion for this cause. They are inspired, passionate and enthusiastic. They serve as sources of inspiration for me! I know that one day, we WILL see a world without ALS.

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