The ALS Association

My Husband Retained His Sense of Humor & Love of Life

Brenda B. Middle Haddam, Connecticut

Yesterday, our youngest daughter graduated from college. Although it was a beautiful ceremony, something important was missing. That something was my husband, Randy, who passed away in February of this year of ALS. Randy's story is like too many others. It began with weakness in the arms and hands. After having fasciculations in both arms for a number of months, I think that was when he began to think there was something really wrong. He finally made an appointment with his physician. She seemed worried and sent him for numerous tests and referred him to a neurologist who told him he had ALS. Randy went to two other neurologists who told him the same. The final diagnosis was given in January 2012. The news was devastating. We had a close family friend who had passed away a few years earlier from ALS, so, we knew exactly what it was. By the end of the summer of 2012, he was in a wheelchair and unable to really do anything on his own. But, he still loved going to movies. Randy was a movie buff, and we took him to a movie every weekend. In October 2013, he lost the ability to speak and used a Dynavox to communicate. That was probably the hardest thing for him of anything. Even though life became so difficult for him, he retained his sense of humor and love of life. Our family was the most important thing to him, and it upset him to have such a hard time communicating with us. However, he lived with dignity up until the end. He really was the bravest person I've ever known. So, yesterday I really missed having him with me at that graduation. He would have been the proudest father there. But, even though he could not be there in person, I know he was there in spirit! I can only hope that the day comes when no other family will have to loose someone they love to this terrible disease.

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