The ALS Association

I Can Still Walk, Talk and Bring Awareness to This Disease

Julianne A. Alta Loma, California

My passions have always been cooking and staying fit. I live for my family’s happiness and keeping with all holiday traditions. In 2008 it all changed. I was diagnosed with ALS at the age of 43. It is now 2014, and I’m 6 years in. Only through the Grace of God can I still walk, talk, and contribute to society through bringing awareness to this disease. My husband and my boys along with my family and friends have been the most amazing support group for me. I have joined the Walk to Defeat ALS and am an active advocate in my community. I believe God’s Plan for me is just this. To help people around us hear the cries of a people suffering from this tragic disease. I have lost many PALS in my short six years, and it is heartbreaking. No family should ever had to watch a loved one deteriorate in such an undignified way. My walk team is “Jules Angels,” and the motto heard throughout our team, 24/7 is “Never Give Up.” I am certainly going to do my best to make a difference. My life may not be perfect now, but it is whole and filled with love and hope, and of course our family traditions continue just with a little more help.

 
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