The ALS Association

A Father's Love: The Story Of My Sweetheart

Rebecca M. Franklin, Indiana

My Sweetheart, Jason M., was diagnosed 18 days after we found out we were expecting our daughter. He was told he had six months to two years life expectancy. Rather then to dwell on the negative, my husband wanted to live life to the fullest, to make each moment count, to make memories with our children and his Sweetheart. He didn't want ALS to define him or the time we had together. I am so grateful we lived in the moment and made each moment count. I would recommend everyone struggling with this disease to live the same way. The laundry, the dishes, the bills will still be there tomorrow, but your loved one isn't guaranteed another day, so enjoy that day with them and live in the moment. Take a ton of photos and videos. They will bring you comfort in the days ahead. Cherish these moments now. I know many are exhausted but cherish being able to see your loved one's beautiful eyes, to be able to tell them you love them, and to be able to hug and hold them. I would give anything to be that exhausted, overworked caregiver. Two weeks before my Sweetheart died, we went on our last date. I was carrying his oxygen tank, giving him morphine by the hour, but to see the smile on his face, I will cherish it forever. My Sweetheart and I had a lifetime of dreams before this disease. After his diagnosis, he dreamed he would see our son off to his first day of kindergarten. He didn't get to see that dream and so many others, and so now my dream is to help fight for a cure, so others will be able to fulfill their dreams with their loved ones. "Life is not measured by the number of breaths we take, but by the moments that take our breath away."

 
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