I am a wife of 38 years, mother of two lovely daughters, grandmother of a beautiful 4 month old boy, and a registered nurse of 42 years. My life changed in October 2012 when I was diagnosed with Amyotrophic Lateral Sclerosis, also known as Lou Gehrig’s disease. In one year, this disease has robbed me of my career, seeing my grandchild grow, and enjoying a fulfilling retirement. I have gone from regular exercise classes, bicycling, and river rafting to 100% dependency on help for my most basic needs. I now “live” in a wheel chair as my leg function has deteriorated. My speech is slowly failing as ALS attacks my throat muscles, and, instead of looking forward to my “twilight” years with excitement, I live with dread of losing my ability to talk, eat, and even breathe without medical support. My dreams of holding my grandchild in my arms, helping my second daughter plan her wedding, and traveling with my husband on retirement vacations are no longer with me.